@akusociety.org
Alkaptonuria Society Alkaptonuria is a rare inherited disorder ALKAPTONURIA EXPLAINED Alkaptonuria, also known as AKU or Black Bone Disease, is an extremel .
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Description
AKU Society is a brand that offers support, resources, and information to individuals affected by Alkaptonuria (AKU). Alkaptonuria is a rare genetic condition that causes a buildup of homogentisic acid in the body, resulting in various symptoms and health issues. AKU Society provides a range of products and services to support those living with AKU.
This includes downloadable resources, counseling services, social and financial assistance, and patient communities where individuals can connect and share their experiences. They also offer information and support for international patients seeking treatment for AKU. In addition to their support services, AKU Society is actively involved in fundraising and events to further research and find a cure for AKU.
They collaborate with various trusts and foundations, such as The National Lottery Community Fund and Genetic Disorders UK, to secure funding for their initiatives and clinical trials. With their commitment to improving the lives of individuals with AKU, AKU Society is a valuable resource for those seeking support, information, and connections within the AKU community
Company Type
Nonprofit
Company Size
2-10
Year Founded
2003
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