@alagille.org
EVERY CONNECTION COUNTS Alagille Syndrome is a complex and sometimes frustrating syndrome.
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The Official ALGSA brand is here to support families worldwide dealing with a rare liver disorder called Alagille Syndrome. As a comprehensive resource, we aim to provide information, support, and connections for individuals navigating this complex syndrome. Our website offers a wealth of knowledge, including research updates, clinical trials, and free educational materials.
We also host support groups, where you can find understanding and friendship from others in similar situations. If you want to get involved, consider hosting a fundraiser or sharing your personal story to inspire and support others. Our toolkits provide step-by-step guidance for fundraising events, and we also offer a memorial scholarship for eligible individuals.
Rest assured, our extensive team of medical and scientific experts, along with dedicated volunteers and staff, are here to make your journey with Alagille Syndrome a little easier. Visit our website to access educational materials, learn about programs, and discover ways to contribute. Together, we can make a difference and empower those affected by Alagille Syndrome.
#ALGSA #AlagilleSyndrome #RareLiverDisorder
Company Type
Nonprofit
Company Size
2-10
Year Founded
1993
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