@asrid.org
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ASrid, which stands for Advocacy Service for Rare and Intractable Diseasesβ multi-stakeholders in Japan, is a nonprofit organization that aims to provide services for all stakeholders in the field of rare and intractable diseases. They are dedicated to serving patients by offering support, information, and collaboration opportunities. ASrid offers a range of projects and activities to address the challenges faced by individuals with rare diseases.
Their J-RARE project is a patient information registry that collects and accumulates patient data to support research, drug development, and welfare improvements. They also organize ODOD, a platform for rare disease patients and researchers to collaborate and share knowledge in the field of orphan drugs. Furthermore, ASrid hosts the Rare Disease Day (RDD) in Japan, supporting the improvement of patients' quality of life through better diagnosis and treatment.
They provide international reports and research on rare diseases and collaborate with patient-related organizations to conduct surveys and research. By donating to ASrid, you can contribute to their efforts in supporting patients and advancing research in the field of rare and intractable diseases
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