Jack McGovern Coats' Disease Foundation is the leading resource for Coats' Disease patients and their families. As a 501(c)(3) non-profit charitable foundation established in 2006, their vision is to find a cure for Coats' Disease while offering hope and improvements to patients in their lifelong battle against this rare disorder and blindness. The foundation serves as a hub for the Coats' Disease community, providing information about specialists who treat this condition and updates on the latest research.

They offer a range of services, including a doctor directory, treatment options, patient stories, and expert videos. They also provide financial resources for patients and families, as well as resources for doctors and researchers. Through funding research projects and grants, the Jack McGovern Coats' Disease Foundation is dedicated to finding a cure for Coats' Disease and pediatric retinal disorders.

Their website is a valuable source of information, connecting patients and their families with a supportive community. By raising awareness and supporting research, they strive to make a difference in the lives of those affected by Coats' Disease