@curecmd.org
Cure CMDβs mission is to advance research toward treatments for the congenital muscular dystrophies and improve the lives of those living with CMD through engagement and support of our community.
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About
Description
Cure CMD is a non-profit organization dedicated to funding research and providing support for individuals diagnosed with Congenital Muscular Dystrophy (CMD). With a mission to advance treatments for CMD, Cure CMD offers a range of resources and services for both the CMD community and scientific researchers. For individuals newly diagnosed with CMD, Cure CMD provides a wealth of information and support through their website, including newsletters and web series on topics such as care guidelines, breathing and cardiac health, orthopedic and physical therapy, and more.
They also offer resources for managing hypoglycemia and sedation, as well as COVID-19 resources. Cure CMD actively promotes research in the field, hosting research roundtables and providing funding for scientific projects. They also operate the Congenital Muscle Disease International Registry (CMDIR), which serves as a valuable tool for researchers and participants alike.
In addition to their research and support efforts, Cure CMD organizes community initiatives such as a creative contest and a peer match and mentorship program. They also engage in legislative advocacy and offer a mobile app for easy access to their resources. By donating to Cure CMD, individuals can contribute to the advancement of treatments for CMD.
Donations are tax-deductible, and the organization has a legacy shop and swag shop where supporters can purchase merchandise to show their support. For any inquiries, Cure CMD can be reached through their website or by phone. They strive to foster inclusivity and make a positive impact on the lives of individuals affected by CMD
Company Type
Nonprofit
Company Size
2-10
Year Founded
2008
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