FARA, the Friedreich's Ataxia Research Alliance, is a leading organization dedicated to researching and finding a cure for Friedreich's Ataxia (FA). With a strong mission and organization, FARA is actively involved in various activities and initiatives to support individuals living with FA. FARA offers a range of programs and resources to advance research in the field.

They provide grants for research projects, support clinical trials, organize scientific conferences, and maintain a patient registry. By collaborating with pharmaceutical professionals, physicians, and institutions, FARA aims to accelerate the development of effective treatments. For individuals living with FA, FARA provides comprehensive support through their clinical care guidelines, patient registry, and community meetups.

They also offer resources for families, including cardiac primers and the Ataxian Athlete Initiative. To fund their research and initiatives, FARA relies on the generous contributions from donors. They offer various ways to donate, participate in events like rideATAXIA, and shop from the FARA store.

Additionally, FARA encourages advocacy and raising awareness about FA to make a lasting impact. FARA is committed to making a difference in the lives of those affected by Friedreich's Ataxia and continues to strive towards a future without the limitations of this rare disease