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Cystinosis CRN

@cystinosis.org

The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research.

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Description

Cystinosis CRN is a brand dedicated to addressing the needs of individuals with cystinosis, a rare genetic metabolic disease. Cystinosis causes the abnormal accumulation of the amino acid cystine in various organs and tissues, leading to widespread tissue and organ damage. This condition can result in kidney failure, muscle wasting, swallowing difficulties, diabetes, and more.


Without treatment, cystinosis can be fatal, particularly in children who often develop end-stage kidney failure. Cystinosis CRN offers a range of products and services to support individuals and families affected by cystinosis. These include educational materials and guides to help manage the condition, support groups, and resources for locating doctors and families in the area.


The brand also provides special programming, such as the Live Like Laura Fun Fund and the Cystinosis Memorial Fund, to promote awareness and raise funds for research. By partnering with healthcare professionals, Cystinosis CRN strives to improve treatments for cystinosis, ultimately aiming for a cure. Your contribution to the brand's research initiatives can make a significant impact in the lives of individuals with cystinosis.


Join Cystinosis CRN in their mission to provide hope and support for the cystinosis community

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Company Type

Nonprofit

Company Size

2-10

Year Founded

1996

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