@cystinosisresearch.org
CRF is dedicated to finding better treatments to improve the quality of life for those with cystinosis and to find a cure for this devastating disease.
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CRF, the Cystinosis Research Foundation, is a dedicated brand that aims to improve the quality of life for individuals affected by cystinosis, a debilitating disease. Their mission is not only to find better treatments but also to find a cure for this devastating condition. CRF offers a wide range of products and services to support their cause.
For families impacted by cystinosis, CRF provides a platform to share unique stories and experiences, fostering a sense of community. They also offer valuable resources, including information on current clinical trials, tools for fundraising, and access to the International Registry for cystinosis. Researchers in the field can benefit from CRF's research overview and apply for research grants to further their studies.
The organization also organizes the International Cystinosis Research Symposium, providing an opportunity for experts to gather and share advancements in the field. CRF's dedication to finding a cure is evident through their annual event, "Natalie's Wish," and their continuous support of cutting-edge stem cell and gene therapy trials. With their commitment and the support of donors, CRF aims to make tomorrow brighter for those living with cystinosis
Company Type
Nonprofit
Company Size
2-10
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