@dtrf.org
Weβre here to find answers with Research, Advocacy, Awareness, and Support.
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Description
The Desmoid Tumor Research Foundation (DTRF) is a dedicated brand that aims to fund research for a cure for desmoid tumors. Founded in 2005, DTRF collaborates with researchers and clinicians worldwide to improve the lives of patients through education, awareness, and support. Their main focus areas include research funding, education and collaboration, patient support, tissue donation, PRO tool development, clinical trials, patient registry, tumor board, and mouse models.
DTRF is the only foundation in the country solely focused on funding desmoid tumor research, with projects conducted at renowned research centers. They seek to understand the underlying causes of desmoid tumors, identify effective treatment options, and develop new drugs. DTRF also organizes an annual Patient Meeting and International Desmoid Tumor Research Workshop to facilitate collaboration and knowledge-sharing among patients, physicians, and researchers.
DTRF provides comprehensive support for patients, offering information, resources, and a supportive community. They also encourage tissue donation for scientific study, which allows researchers to develop models for a better understanding of desmoid tumors. Additionally, DTRF is involved in the development of a validated Patient Reported Outcome (PRO) tool and actively connects patients to clinical trials.
Through their efforts, DTRF is making significant advancements in desmoid tumor research and offering hope for a cure. With continued support, they are confident that their goal of finding a cure is within reach. Learn more about their achievements and how you can contribute to their cause on their website
Brand industry
Community and Society
Philanthropy
Brand size
2-10 employees
Company type
Nonprofit
Year founded
2005
@dtrf.org
Weβre here to find answers with Research, Advocacy, Awareness, and Support. The Desmoid Tumor Research Foundation is accelerating the race toward more treatments and a cure for each and every [β¦]
Logo
SVG
Logo
SVG
Icon
JPEG
Icon
JPEG
Description
The Desmoid Tumor Research Foundation (DTRF) is a dedicated brand that aims to fund research for a cure for desmoid tumors. Founded in 2005, DTRF collaborates with researchers and clinicians worldwide to improve the lives of patients through education, awareness, and support. Their main focus areas include research funding, education and collaboration, patient support, tissue donation, PRO tool development, clinical trials, patient registry, tumor board, and mouse models.
DTRF is the only foundation in the country solely focused on funding desmoid tumor research, with projects conducted at renowned research centers. They seek to understand the underlying causes of desmoid tumors, identify effective treatment options, and develop new drugs. DTRF also organizes an annual Patient Meeting and International Desmoid Tumor Research Workshop to facilitate collaboration and knowledge-sharing among patients, physicians, and researchers.
DTRF provides comprehensive support for patients, offering information, resources, and a supportive community. They also encourage tissue donation for scientific study, which allows researchers to develop models for a better understanding of desmoid tumors. Additionally, DTRF is involved in the development of a validated Patient Reported Outcome (PRO) tool and actively connects patients to clinical trials.
Through their efforts, DTRF is making significant advancements in desmoid tumor research and offering hope for a cure. With continued support, they are confident that their goal of finding a cure is within reach. Learn more about their achievements and how you can contribute to their cause on their website
Brand industry
Community and Society
Philanthropy
Brand size
2-10 employees
Company type
Nonprofit
Year founded
2005
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exploregod.com
AmPhil
philanthropydaily.com
National Council of Nonprofits
councilofnonprofits.org
National Coalition Against Censorship
ncac.org