@ehlers-danlos.org
Support for people affected by the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD)
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About
Description
The Ehlers-Danlos Support UK is the premier UK charity dedicated to providing support and assistance to anyone affected by the Ehlers-Danlos syndromes. With a focus on raising awareness, offering community support, and providing management and medical information, EDS UK stands out as a vital resource for individuals impacted by this condition. The organization offers various support services, including a freephone helpline and support groups across different regions in the UK.
They also provide valuable resources to healthcare professionals and schools, aiming to empower them with the knowledge needed to assist those with EDS. Furthermore, EDS UK encourages public involvement through fundraising, donations, subscriptions, and volunteering, as these contributions can make a significant difference in the lives of people affected by Ehlers-Danlos syndrome. With a commitment to making the invisible visible, EDS UK is dedicated to ensuring that no one battles Ehlers-Danlos syndrome alone.
Join the cause, become a member, subscribe to Fragile Links magazine, or make a donation to support those touched by this condition and make a positive impact
Company Type
Nonprofit
Company Size
2-10
Year Founded
1987
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