# Glutarazidurie - **Website:** - **Primary alias:** `glutarazidurie.de` ## Description Selbsthilfegruppe Glutarazidurie e.V. is a registered self-help association supporting people with glutaric aciduria and their families. Focused on the needs of those affected by this rare inherited metabolic disorder, the group aims to make everyday life easier through practical information, mutual support and opportunities to connect with others facing similar challenges. The association provides members with a forum for exchanging experiences and finding contacts, including in crisis situations. Its resources include answers to frequently asked questions, emergency-management guidance developed by specialists, and links to hospitals in Europe and beyond with experience treating the condition. The group also shares general information about glutaric aciduria and its management. Each year, the association organizes a gathering featuring presentations by medical professionals and time for members and families to talk and learn from one another. As a participatory community, it welcomes involvement from both affected people and relatives. The organization is funded through membership fees and donations, which may be tax-deductible; it can provide donation receipts. ## Industries - ⛑ Health - ⛑ Health Conditions and Concerns _(under Health)_ ## Links - [facebook](https://facebook.com/glutarazidurie) - [instagram](https://instagram.com/shgga195) ## Logos & icons - logo _(primary)_ — PNG — [download](https://cdn.brandfetch.io/id74yO7WFk/w/250/h/111/theme/dark/logo.png?c=1bxid64Mup7aczewSAYMX&t=1792876447592) - icon _(primary)_ — JPEG — [download](https://cdn.brandfetch.io/id74yO7WFk/w/791/h/790/theme/dark/icon.jpeg?c=1bxid64Mup7aczewSAYMX&t=1792876447894) ## Colors | Name | Hex | Theme | | --- | --- | --- | | Concrete | #f3f3f3 | accent | | Paco | #491217 | dark | | Alabaster | #f9f9f9 | light | ## Fonts - var(--headFont) — asset _(custom)_ - var(--bodyFont) — asset _(custom)_ --- _Source: _ _See [/llms.txt](/llms.txt) for a full list of agent-readable pages, and [/auth.md](/auth.md) for how agents authenticate._