Jain Foundation Inc. With a singular focus on this specific condition, the foundation aims to make a difference in the lives of those affected by dysferlinopathy. Their extensive research efforts include funding studies, active research projects, and clinical projects, all aimed at understanding the underlying causes of dysferlinopathy and exploring therapeutic options.

The foundation also organizes conferences, webinars, and meetings to foster collaborations and share the latest research findings. In addition to their research initiatives, Jain Foundation Inc. These resources include comprehensive information about dysferlinopathy, symptoms, care management, testing, and diagnosis.

Furthermore, they offer a registry for patients to connect with clinicians and participate in clinical trials, studies, and surveys. Choose Jain Foundation Inc