Maladies Rares Info Services

Maladies Rares Infos Services is the leading information and support service for rare diseases. They offer a professional and non-profit service that aims to provide information, support, and a platform for individuals to share their experiences and connect with others. Whether you need to be heard, informed, testify, or exchange, Maladies Rares Infos Services is there for you.

Their team of experts is available to address your questions and provide guidance through phone calls or emails. Additionally, they provide extensive resources, including forums, regional events, and news, to keep you informed about rare diseases. You can also find information about national plans for rare diseases and discover the nearest expert center or network.

Maladies Rares Infos Services is supported by AFM Téléthon and the Ministry of Social Affairs, Health, and Women's Rights