@myotonic.org
The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process.
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About
Description
The Myotonic Dystrophy Foundation is dedicated to providing accurate information and support to those affected by myotonic dystrophy (DM). This genetic disorder can have a significant impact on various body systems and functions, making it crucial for individuals and their families to navigate the complexities of the condition. The foundation aims to empower individuals by sharing the experiences of others living with DM, as well as providing comprehensive resources and tools.
While there is currently no cure for myotonic dystrophy, the foundation emphasizes the importance of active symptom management and participation in care. Through their website, individuals can access FAQs, research updates, support groups, and educational materials. Stay informed and connected with the latest advancements in research, strategies for daily living, and upcoming events by signing up for their monthly newsletter.
The Myotonic Dystrophy Foundation is committed to making a difference in the lives of those affected by DM
Company Type
Nonprofit
Company Size
2-10
Year Founded
2007
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