NF Patients United is a global network of neurofibromatosis patient organizations, dedicated to supporting individuals with neurofibromatosis (NF) and their families. Neurofibromatosis is a genetic condition that poses various challenges, including limited access to proper medical and psychological care, information, clinical trials, and awareness among healthcare professionals and the general public. To overcome these challenges, NF Patients United has established a strong umbrella association in Europe.

By exchanging ideas and best practices among national patient organizations, they aim to develop a common strategy and implement it across Europe. This collaborative approach allows them to save resources and maximize the impact of their activities. NF Patients United includes full member organizations from various European countries, such as Austria, Italy, Denmark, Spain, Greece, UK, Netherlands, Portugal, Switzerland, Ireland, Russia, Cyprus, Bulgaria, France, Norway, Sweden, Poland, and others.

They also provide opportunities for individuals to become members and support their cause. Join NF Patients United to be part of a united effort in improving the lives of neurofibromatosis patients