@nfed.org
We empower and connect those touched by ectodermal dysplasias through education, support and research.
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The National Foundation for Ectodermal Dysplasias (NFED) is dedicated to empowering and connecting individuals affected by ectodermal dysplasias through education, support, and research. Our mission is to provide resources, treatment options, and a sense of community for people like you who are impacted by these conditions. We offer a variety of services, including advocacy for the Ensuring Lasting Smiles Act (ELSA), which aims to improve access to treatment for ectodermal dysplasias.
You can join us for Advocacy Day on Capitol Hill to support ELSA, or become an advocate and raise awareness for this cause. Additionally, we have a store where you can find products related to ectodermal dysplasias, and we provide educational materials and webinars to help you understand the symptoms and types of this condition. We are here to help you navigate your journey and find the support you need
Company Type
Nonprofit
Company Size
2-10
Year Founded
1981
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