OIGesellschaft

Deutsche OI Gesellschaft, also known as the Deutsche Gesellschaft für Osteogenesis imperfecta (Glasknochen) Betroffene e. V. OI is a rare genetic disorder that affects the synthesis of collagen fibers, resulting in extremely fragile bones and other connective tissues.

The condition can manifest in various ways, with some individuals experiencing as many as 50 bone fractures in their lifetime, leading to numerous surgeries. The DOIG provides information and resources for individuals, families, medical professionals, and caregivers interested in OI. Their website offers a comprehensive range of services, including a list of physicians specializing in OI, information on diagnosis, physiotherapy, literature, and resources for schools.

They also have online support groups, regional branches, and a closed portal for members to connect and exchange information. Whether you are a patient, caregiver, medical professional, or simply interested in OI, the DOIG website aims to provide a valuable source of information and support