@oif.org
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About
Description
OI Foundation is a brand that focuses on Osteogenesis Imperfecta (OI), a genetic bone disorder commonly known as brittle bone disease. OI is characterized by fragile bones that break easily and affects various body systems. The brand offers a range of products and services to support individuals with OI, including informational factsheets, books, and brochures, as well as video resources available on their YouTube channel.
They also provide resources such as OI Clinic and Physician directories to help individuals find medical support. Additionally, OI Foundation conducts research and offers opportunities for individuals to join the OI Registry and participate in current studies. They organize events and conferences for medical professionals and encourage community involvement through membership, fundraising, and volunteering.
With good medical management and supportive care, people with OI can lead healthy lives and expect an average lifespan. OI Foundation aims to provide comprehensive support for the OI community, helping individuals navigate their journey with this lifelong disorder
Company Type
Nonprofit
Company Size
2-10
Year Founded
1970
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