The American Porphyria Foundation (APF) is a non-profit organization dedicated to improving the health and well-being of individuals and families affected by Porphyria, a group of eight inherited genetic disorders. With a relentless focus on education, advocacy, support services, and research, the APF aims to prevent, treat, and ultimately find a cure for Porphyria. Their comprehensive services include patient support and assistance, access to a network of Porphyria experts and treating physicians, information on diet and nutrition, as well as a Safe/Unsafe Drug Database and Emergency Room Guidelines for Acute Porphyrias.

Healthcare professionals can also benefit from the APF's resources, such as a professional portal, publications, CME opportunities, and additional resources. In addition, the APF actively promotes awareness and fundraising through events, as well as Porphyria Awareness Week. By joining the APF, you can add your voice to the Porphyria community and make a difference in the lives of those affected by this condition.

Learn more about Porphyria, stay updated with the latest news, and support the APF's mission to empower patients and find a cure through research. Contact them to get involved and make a positive impact on the Porphyria community