The PTEN Foundation is dedicated to finding treatments and therapies for PTEN Syndromes, including Cowden syndrome, Bannayan-Riley-Ruvalcaba syndrome, PTEN-related Proteus syndrome, and Proteus-like syndrome. With a mission centered on funding research, providing education, supporting patients, and raising awareness, the foundation aims to improve the lives of individuals affected by these rare genetic conditions. They offer a patient-powered registry, where research is driven by patients and their real-world experiences.

By participating in the registry, individuals can contribute to advancing knowledge and treatment options. Through their website, the PTEN Foundation also provides resources, including helpful brochures to take to physician visits, informative articles, and patient testimonials that highlight the support and information the foundation offers. Whether you're seeking information, support, or opportunities to contribute, the PTEN Foundation is here to help