# Rare Epilepsy Network

- **Website:** <https://rareepilepsynetwork.org>
- **Primary alias:** `rareepilepsynetwork.org`
- **Founded:** 2013
- **Employees:** 2+
- **Location:** Washington, District of Columbia, United States
- **Company kind:** NON PROFIT

## Description

Rare Epilepsy Network (REN) is a volunteer network comprised of rare epilepsy organizations and broad epilepsy stakeholders dedicated to improving the lives of individuals affected by rare epilepsies. Established in 2013, REN was initially funded by a grant from the Patient-Centered Outcomes Research Institute (PCORI) and managed by the Epilepsy Foundation (EF). Over the years, REN has grown to include 32 organizations and has launched a groundbreaking rare epilepsy registry, encompassing 41 diseases and involving 1,500 patients. After the PCORI grant ended in 2019, REN expanded its scope, undertaking multiple projects and fostering greater transparency in its mission and composition. REN's goal is to promote patient-centered outcomes research, facilitate successful clinical trials, and enhance representation of rare epilepsies in funding, research, advocacy, and drug development. With a focus on collaboration, REN aims to improve patient-defined outcomes through rigorous scientific inquiry. Join REN and be part of a collective effort to advance the well-being of rare epilepsy patients and their families.

## Industries

- ⛑ Public Health and Safety _(under Health)_
- ⛑ Health

## Links

- [youtube](https://youtube.com/channel/UCPShzZAv0-KVp2RmOxK9w2Q)
- [twitter](https://twitter.com/rareepilepsy)
- [linkedin](https://linkedin.com/company/rareepilepsy)
- [instagram](https://instagram.com/rare.epilepsy.network)
- [facebook](https://facebook.com/profile.php?id=61572362133376)

## Logos & icons

- icon _(primary)_ — JPEG — [download](https://cdn.brandfetch.io/idQAKw4igD/w/400/h/400/theme/dark/icon.jpeg?c=1bxid64Mup7aczewSAYMX&t=1775123738394)
- logo _(primary)_ — PNG — [download](https://cdn.brandfetch.io/idQAKw4igD/w/180/h/180/theme/light/logo.png?c=1bxid64Mup7aczewSAYMX&t=1775123738273)

## Colors

| Name | Hex | Theme |
| --- | --- | --- |
| Cedar Wood Finish | #6f2700 | dark |
| Cherokee | #fcd29d | light |
| Juniper | #6b8887 | accent |

## Fonts

- Arial — asset _(custom)_

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_Source: <https://brandfetch.com/rareepilepsynetwork.org>_
_See [/llms.txt](/llms.txt) for a full list of agent-readable pages, and [/auth.md](/auth.md) for how agents authenticate._