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International Rett Syndrome Foundation

@rettsyndrome.org

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The International Rett Syndrome Foundation (IRSF) is dedicated to creating a world without Rett syndrome. Rett syndrome is a rare genetic neurological disorder that severely impacts individuals' lives, particularly affecting speech, hand use, and coordination. Recognized in infancy and primarily occurring in girls, Rett syndrome is caused by a gene mutation, with a growing number of males also being identified.


IRSF is committed to empowering families affected by Rett syndrome by providing the latest medical information, essential support, and valuable resources. They advocate for those living with the condition and offer a full-spectrum approach to research, aiming to improve care and develop treatments and potential cures. With every 2 hours seeing a child born with Rett syndrome, IRSF invites everyone to join their mission and make a difference.


By supporting IRSF's cause through donations, fundraising events, and raising awareness, individuals can help transform the lives of those affected by Rett syndrome. Together, we can create a world without this condition

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Company Type

Nonprofit

Company Size

11-50

Year Founded

2007

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