# RFC1 - **Website:** - **Primary alias:** `rfc-1.org` ## Description The RFC1 Foundation is a registered 501(c)(3) nonprofit dedicated to people and families affected by RFC1-related CANVAS and spectrum disorders. RFC1 disease is a rare genetic neurological condition that can affect balance, coordination, and sensory nerve function; symptoms may develop gradually in adulthood. The Foundation works to improve awareness, encourage earlier recognition and diagnosis, and support scientific research into the condition. Its work is organized around CARE: Community, Awareness, Research, and Empowerment. The organization connects patients and families, provides accessible educational information for the public and healthcare professionals, supports scientific discovery and treatment development, and offers resources to help people navigate life with RFC1 disease. Through its website, visitors can learn about RFC1, explore patient journeys, read news and newsletters, and find information for those newly diagnosed. The Foundation also shares research updates and provides ways to join, contact the organization, or donate. Founded by Dr. Allan Tissenbaum, it aims to help address the under-recognition of RFC1 disease and strengthen support for those affected. ## Industries - ⛑ Health - ⛑ Health Conditions and Concerns _(under Health)_ - 🎗 Community and Society - 🎗 Philanthropy _(under Community and Society)_ ## Logos & icons - logo _(primary)_ — PNG — [download](https://cdn.brandfetch.io/idZSurywbh/w/1036/h/444/theme/dark/logo.png?c=1bxid64Mup7aczewSAYMX&t=1793666206960) ## Colors | Name | Hex | Theme | | --- | --- | --- | | White Linen | #f4e8dc | accent | | Big Stone | #14253e | dark | | Chalky | #f0cf92 | light | ## Fonts - Montserrat — asset _(google)_ - Montserrat — asset _(google)_ --- _Source: _ _See [/llms.txt](/llms.txt) for a full list of agent-readable pages, and [/auth.md](/auth.md) for how agents authenticate._