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Riaan Research Initiative


We have the tools to conquer genetic disease.


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Riaan Research Initiative is a brand dedicated to promoting and advancing translational scientific research with the aim of developing treatments for severe and life-limiting genetic disorders. Led by a team of experts and researchers, the initiative focuses on the pursuit of a cure for Cockayne Syndrome, a fatal neurodegenerative disease. Riaan, the beautiful son of Gurjot Jo Kaur and Richard Richie DiGeorge, was diagnosed with this devastating disorder. Despite being told there was no cure and no help available, the parents refused to accept the narrative.

Cockayne Syndrome affects a few hundred children and adults worldwide and presents a range of life-threatening symptoms, including neurodegeneration, vision and hearing loss, developmental delays, and more. Through their research efforts and collaborations with leading experts in the field, Riaan Research Initiative strives to unlock new insights and develop potential treatments for this ultra-rare disorder. With a relentless commitment to scientific advancement, they offer hope to families affected by Cockayne Syndrome and work towards a brighter future for those who are affected.


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