# RZADKIE CHOROBY - **Website:** - **Primary alias:** `rzadkiechoroby.org` ## Description Krajowe Forum ORPHAN, also known as the National Forum for Rare Disease Therapies, is a Polish organization focused on improving care and support for people living with rare diseases. Based in Warsaw, it brings together member organizations and works to represent patient perspectives in discussions about healthcare policy and system-wide solutions. Its activities include organizing events, workshops and public discussions with patient groups, medical experts, public officials and other healthcare stakeholders. The Forum also supports awareness campaigns, including initiatives linked to Rare Disease Day, and publishes news and information about rare diseases, patient needs and developments in Poland and Europe. Its work includes patient audits and clinical audits, as well as projects on newborn screening and educational materials. The organization participates in national and European conversations about rare disease plans and coordinated action. Through its website, Krajowe Forum ORPHAN shares updates, event information and resources, and provides information about membership. Its overall aim is to encourage collaboration and advance practical improvements for the rare disease community in Poland. ## Industries - ⛑ Health - ⛑ Health Conditions and Concerns _(under Health)_ - ⛑ Public Health and Safety _(under Health)_ ## Links - [facebook](https://facebook.com/KrajoweForumOrphan) ## Logos & icons - logo _(primary)_ — PNG — [download](https://cdn.brandfetch.io/id3Z42OwB2/w/240/h/112/theme/dark/logo.png?c=1bxid64Mup7aczewSAYMX&t=1793004172818) - icon _(primary)_ — JPEG — [download](https://cdn.brandfetch.io/id3Z42OwB2/w/227/h/227/theme/dark/icon.jpeg?c=1bxid64Mup7aczewSAYMX&t=1793004172936) ## Colors | Name | Hex | Theme | | --- | --- | --- | | Sherpa Blue | #004a59 | accent | | Black | #000000 | dark | | Goldenrod | #ffcb70 | light | ## Fonts - PT Sans — asset _(google)_ - Verdana — asset _(custom)_ --- _Source: _ _See [/llms.txt](/llms.txt) for a full list of agent-readable pages, and [/auth.md](/auth.md) for how agents authenticate._