@sallsyntadiagnoser.se
Rare diseases Sweden
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About
Description
Sällsynta diagnoser is a Swedish brand dedicated to supporting individuals with rare diseases or syndromes. As an interest organization, they work tirelessly to improve the lives of those living with these conditions. With estimates suggesting that around 5% of the Swedish population is affected by a rare health condition, their work is crucial.
Sällsynta diagnoser offers a range of products and services to provide the best possible care and support. They have a comprehensive database of diagnoses, allowing individuals to access important information about their condition. They also facilitate shared learning through personal and professional stories, as well as offering digital education for patient advocates.
The organization hosts events like the annual Sällsynta dagen, where individuals can connect with others facing similar challenges. In addition, Sällsynta diagnoser provides resources for their members, including access to regional networks and workshops. They also advocate for equal healthcare and play a vital role in influencing decision-makers and policymakers.
With their commitment to improving the lives of individuals with rare diseases, Sällsynta diagnoser is a trusted and invaluable resource for those in need
Company Type
Nonprofit
Company Size
2-10
Year Founded
1998
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