SMA Foundation is a brand dedicated to providing resources and support for patients and families affected by Spinal Muscular Atrophy (SMA). With a focus on improving the lives of individuals with SMA, SMA Foundation offers a wide range of services and products. Their website features comprehensive information about SMA, including an FAQ section, informational materials, and a glossary of SMA-related terms.

Additionally, they provide educational videos and animations from the DNA Learning Center that cover various aspects of SMA, such as causes, genetics, diagnosis, and current and potential therapies. For those seeking genetic testing or evaluation and counseling, SMA Foundation provides a list of laboratories and clinics through the National Center for Biotechnology Information. SMA Foundation recognizes the importance of care and daily life management for individuals with SMA.

They offer resources on education, equipment, home life, insurance, parenting, recreation, relationships, and travel. Their medical issues page covers topics including respiratory care, therapy, orthopedics, nutrition, and palliative care. Healthcare providers can find invaluable resources on SMA care practices, clinical trials, and research updates.

The foundation connects healthcare professionals with specialized clinical centers and research networks. For those looking to join clinical trials or participate in patient registries, SMA Foundation provides information on current trials and registries, including the International SMA Patient Registry and regional registries supported by Treat-NMD. SMA Foundation also highlights the importance of patient support and advocacy.

They offer a global list of SMA advocacy organizations and connect patients and families with resources and services from Cure SMA and Muscular Dystrophy Association. Overall, SMA Foundation is dedicated to empowering individuals with SMA and their families by offering comprehensive resources, support, and information to enhance their quality of life