# Surviving CDH - **Website:** - **Primary alias:** `survivingcdh.org` ## Description Surviving CDH is a resource hub dedicated to supporting families affected by congenital diaphragmatic hernia (CDH) and raising awareness of the condition. Created from a parent’s perspective, the site shares information for families navigating diagnosis, hospital care, and life after discharge, while emphasizing that its content is educational and not a substitute for advice from qualified medical professionals. The website organizes resources for new CDH families, life after discharge, grief and loss, and CDH research. Visitors can also find frequently asked questions and hospital information, register a “Warrior,” and learn about reherniation. Surviving CDH highlights the challenges and realities of the CDH journey, noting that the condition occurs in approximately one in every 2,500 to 3,000 live births. The organization is developing “Surviving CDH: The Guide,” a downloadable resource intended to cover the journey from diagnosis through discharge and beyond, with practical tools such as a NICU dictionary, milestone checklist, and hospital-life tips. The site also invites visitors to sign up for updates, support fundraisers, and donate. ## Industries - ⛑ Health - ⛑ Childrens Health _(under Health)_ - ⛑ Health Conditions and Concerns _(under Health)_ - 🎗 Community and Society - 🎗 Philanthropy _(under Community and Society)_ ## Links - [facebook](https://facebook.com/survivingcdh) - [instagram](https://instagram.com/survivingcdh) ## Logos & icons - logo _(primary)_ — PNG — [download](https://cdn.brandfetch.io/idiaNAMTbc/w/1500/h/224/theme/light/logo.png?c=1bxid64Mup7aczewSAYMX&t=1793160208805) - icon _(primary)_ — JPEG — [download](https://cdn.brandfetch.io/idiaNAMTbc/w/1042/h/1041/theme/dark/icon.jpeg?c=1bxid64Mup7aczewSAYMX&t=1793160209124) ## Colors | Name | Hex | Theme | | --- | --- | --- | | Chambray | #3b5998 | accent | | Black | #000000 | dark | | Equator | #dfaa58 | light | ## Fonts - granville — asset _(custom)_ - granville — asset _(custom)_ --- _Source: _ _See [/llms.txt](/llms.txt) for a full list of agent-readable pages, and [/auth.md](/auth.md) for how agents authenticate._