# Von Hippel-Lindau - **Website:** - **Primary alias:** `vonhippellindau.nl` ## Description The Von Hippel-Lindau Association is a patient advocacy organization that brings people affected by Von Hippel-Lindau (VHL) together and represents their interests. Its website provides information about VHL, including topics such as Belzutifan, expert care, and quality criteria for VHL services. The association also helps members connect with others who share their experiences through peer-support opportunities and dedicated contact activities. It organizes meetings for people affected by VHL, including a forthcoming peer gathering in Hoeven, and publishes the VHL magazine to keep its community informed. Visitors can learn more about the organization’s aims and activities, find contact details, and explore options for joining or supporting its work. The association’s services are intended to help patients find information, build connections, and have a stronger voice. Based in the Netherlands, it provides contact through its secretariat in Utrecht, by telephone, and by email. The website also includes a privacy statement and information about cookie use. ## Industries - ⛑ Health - ⛑ Health Conditions and Concerns _(under Health)_ ## Logos & icons - logo _(primary)_ — PNG — [download](https://cdn.brandfetch.io/id0Q5f_Fbh/w/175/h/176/theme/dark/logo.png?c=1bxid64Mup7aczewSAYMX&t=1791547669972) ## Colors | Name | Hex | Theme | | --- | --- | --- | | Gin | #e6f1e9 | accent | | Cod Gray | #0f0f0f | dark | | Chalky | #efcb9f | light | ## Fonts - moderat — asset _(custom)_ --- _Source: _ _See [/llms.txt](/llms.txt) for a full list of agent-readable pages, and [/auth.md](/auth.md) for how agents authenticate._