@vsop.nl
De VSOP is er voor alle Nederlanders met een zeldzame en/of genetische aandoening, dus ook de erfelijke, chromosomale en aangeboren aandoeningen.
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VSOP is the national patients' umbrella organization in the Netherlands for rare and genetic diseases, including hereditary, chromosomal, and congenital conditions. They are dedicated to supporting and advocating for individuals and families affected by these types of diseases. VSOP offers a range of services and resources to assist patients, healthcare professionals, and organizations.
These include projects and initiatives both within the Netherlands and on a European level, as well as expert evaluation and consultation services. Furthermore, they provide support to patients' organizations, facilitate communication with their members, and offer a variety of useful documents and information. Some of their key areas of focus include collaboration with patient organizations, development of quality standards and platforms, and partnerships with healthcare providers.
VSOP also actively promotes awareness and conducts research in the fields of pregnancy, genetics, diagnostics, and therapy development, as well as advocating for better policies and access to medication. In summary, VSOP plays a vital role in amplifying the voices of individuals with rare and genetic diseases, working towards improving their quality of life, and fostering cooperation among stakeholders in the healthcare sector
Company Type
Nonprofit
Company Size
11-50
Year Founded
1979
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