@fpwr.ca
The mission of FPWR Canada is to eliminate the challenges of Prader-Willi Syndrome through the advancement of research and therapeutic development.
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FPWR, or Foundation for Prader-Willi Research, is a brand that is dedicated to finding treatments for Prader-Willi Syndrome (PWS). PWS is a genetic disorder that affects both males and females of all races and ethnicities, occurring in approximately one out of every 12,000 - 15,000 births. This syndrome is recognized as a common cause of childhood obesity.
Founded by Andrea Prader, Alexis Labhart, and Heinrich Willi in 1956, FPWR Canada is committed to advancing research and providing support for individuals and families affected by PWS. They offer a range of services and resources, including diagnosis and treatments, information for new parents, and a research blog that highlights current projects and outcomes. FPWR also facilitates clinical trials and offers grant applications for further research.
In addition to their research efforts, FPWR aims to raise awareness about PWS through educational advocacy and by sharing stories of hope. They rely on the support of volunteers and sponsors to make a difference in the lives of those living with PWS. If you want to learn more or get involved, you can visit their website or contact them directly
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