The Joshua Frase Foundation (JFF) is a non-profit organization dedicated to finding a cure or treatment for centronuclear and myotubular myopathies, rare and fatal neuromuscular disorders. Since its establishment in 1996, the foundation has been funding cutting-edge research in regenerative medicine, gene therapy, and genetics. JFF has made significant contributions to the field, pioneering a curative treatment that has the potential to transform neuromuscular research.

Alongside its groundbreaking scientific endeavors, JFF has also built an international community of children and parents affected by these disorders, providing support and resources. The foundation offers monetary assistance to cover the costs of medical equipment and materials, and also offers emotional support to families, creating a network for individuals to connect, stay informed, and support each other. With a team of leading researchers from various institutions, JFF continues to strive towards understanding the pathology of these disorders and developing effective therapies.

Support from JFF has proven invaluable to families and the research community, bringing them together in the search for a cure