The KCNT1 Epilepsy Foundation in Contoocook, NH is dedicated to providing resources and support to parents of children with KCNT1-related epilepsy. Being diagnosed with this condition can be overwhelming for both the child and their parents, and the foundation aims to help families navigate this new journey. While they cannot provide medical advice, they offer information and guidance on important topics to discuss with healthcare providers.

The foundation also has a network of parents who support each other and are available to help and answer questions. KCNT1 is a channel that affects the flow of electricity in the brain and heart, and mutations in the KCNT1 gene can lead to increased electrical activity in the brain, causing seizures. The foundation provides information on the different types of KCNT1-related epilepsy syndromes, their symptoms, diagnosis, and treatment options.

They also offer resources on managing associated issues such as feeding difficulties and cardiac complications. The foundation is committed to helping parents care for their children and can provide valuable support throughout this challenging journey