The Littlest Tumor Foundation is a nonprofit organization dedicated to changing the future of Neurofibromatosis (NF). Founded by a mother whose son was diagnosed with NF at a young age, the foundation aims to increase understanding of the disorder, empower affected families, and advance research of preventative therapies. They offer a range of programs and services to achieve these goals.

The foundation hosts the annual NF Family Wellness Retreat, which provides knowledge-building, compassion, and adventure to families affected by NF. They also advocate for federally funded NF research and actively engage with Congress to ensure continued support. In addition, the foundation works to promote awareness of NF through events, fundraisers, collaborations, and educational initiatives.

By championing wellness, advancing research, and connecting the NF community, the Littlest Tumor Foundation is making a nationwide impact and striving for a better future for all those affected by NF