The Marfan Foundation, located in Port Washington, NY, is dedicated to saving lives and improving the quality of life for individuals affected by Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions. Their mission is supported by their core beliefs and values, which include putting families at the heart of what they do and being vigilant in getting people diagnosed. The foundation tirelessly advances research for treatments that save lives and enhance the quality of life for affected individuals.

They push for government funding and facilitate the sharing of knowledge about these conditions through conferences, symposia, and partnerships. They also provide a supportive community, offering resources and support for individuals, families, and medical professionals. The foundation has a dedicated team of staff and a board of directors, as well as boards of medical advisors who provide guidance and oversight.

Through their efforts, they strive to drive progress forward, create a welcoming and effective community, and ultimately, bring hope and a bright future to those living with these conditions