Prader-Willi Syndrome Association | USA is a national support organization established in 1975 with the aim of improving the lives of individuals affected by Prader-Willi syndrome (PWS). Committed to empowering the PWS community, they provide valuable resources, support, education, research, and advocacy. With chapters across the country, Prader-Willi Syndrome Association | USA is dedicated to assisting individuals with PWS and their families at every stage of their journey.

They offer Family Support, Social Stories, Advocacy & Awareness initiatives, and a range of valuable resources. Their extensive collection includes Brain Tissue Donation, Glossary of Terms, Fitness Programs, and guides on Health & Wellness, Diet and Nutrition, and School Success. Additionally, they provide awareness events such as the Moms’ Retreat and National Convention and facilitate peer-to-peer fundraisers.

By fostering a compassionate and informed community, Prader-Willi Syndrome Association | USA strives to enhance the quality of life for those affected by PWS