@rarediseases.org
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
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NORD, the National Organization for Rare Disorders, is a brand dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases. With a mission to empower individuals with rare diseases to live their fullest and best lives, NORD focuses on practical, meaningful, and enduring change. They offer a range of products and services to support the rare disease community, including patient assistance programs for access to medication and caregiver support, a comprehensive Rare Disease Database with information on over 1,200 rare diseases, and Rare Disease Centers of Excellence for diagnosis and treatment.
Additionally, NORD's IAMRAREยฎ Program allows individuals to enroll in their registry to assist researchers in better understanding and treating rare diseases. By providing knowledge, resources, and advocacy, NORD strives to uplift and empower those affected by rare diseases
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