The FamilieSCN2A Foundation is an organization formed by parents whose children have been diagnosed with rare forms of Epilepsy and Autism caused by changes in the SCN2A gene. As a registered 501(c)(3) organization, their mission is to accelerate research, build a supportive community, and advocate for those affected by SCN2A-related disorders worldwide. Their focus extends beyond just the patients themselves, recognizing that these disorders have a profound impact on the entire family.

With a team dedicated to improving lives, they strive to provide effective treatments and cures for all SCN2A-related disorders. The foundation offers various programs and services to help families navigate this journey. They provide resources, including clinical trials, information on finding doctors, and support for those who are newly diagnosed or still undiagnosed.

They also organize events, conferences, and a global family network to foster connections and provide support to families. To further their mission, the foundation welcomes donations and offers a store where supporters can purchase items. They also have a blog and a newsletter to keep individuals informed about current research, events, and stories of hope.

By joining forces with the FamilieSCN2A Foundation, you can be a voice for SCN2A-related disorders and make a difference in the lives of those affected