@softbones.org
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About
Description
Soft Bones is a brand dedicated to providing resources and support for individuals with Hypophosphatasia (HPP), an inherited metabolic disorder that affects bone and teeth development. HPP is characterized by low levels of the enzyme alkaline phosphatase (ALP). Soft Bones offers a wide range of programs and services to support patients, including patient support, youth and teen programs, physician support, patient education, policy and partnerships, and the HPP community.
They also provide valuable resources such as fact sheets, brochures, webinars, podcasts, newsletters, and patient stories. Soft Bones is committed to conducting research and raising awareness about HPP. They offer opportunities for individuals to get involved through volunteering and donations.
Whether you are newly diagnosed or looking for information about HPP, Soft Bones is here to provide valuable resources and support. Visit their website to learn more
Company Type
Nonprofit
Company Size
2-10
Year Founded
2009
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