@stopald.org
The Stop ALD Foundation focuses on accelerating the process of developing new knowledge and new therapies for adrenoleukodystrophy (ALD), and works to accelerate implementation of newborn screening for ALD.
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Stop ALD Foundation, based in Houston, TX, is a brand dedicated to accelerating the process of developing new knowledge and therapies for adrenoleukodystrophy (ALD). Their primary goal is to improve detection, diagnosis, and treatment of ALD by raising awareness among the medical profession and the public. Additionally, they work towards the implementation of newborn screening for ALD.
ALD is a deadly genetic disease that affects approximately 1 in 18,000 people, with boys and men being the most severely affected. It is a brain disorder that destroys the protective sheath called myelin, which surrounds the brain's neurons. Stop ALD Foundation aims to serve as a resource for families affected by this condition, offering support and guidance.
Through research and clinical trials, they strive to develop new therapies for ALD. Their website provides comprehensive information about ALD, including its diagnosis, treatment options, and frequently asked questions. The foundation also keeps individuals informed about recent updates and news related to ALD.
By donating to Stop ALD Foundation, you can contribute to their mission of advancing ALD therapy development, raising awareness, and preventing the devastating effects of this disease
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