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Ygsa

@ygsa.org

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YGSA (Young Genetic Stroke Alliance) is an organization focused on advancing knowledge and treatments for children and young adults with genetic cerebrovascular disorders. Their mission is to establish a global network of researchers, clinicians, patients, patient advocates, and industry partners to improve the lives of those affected by stroke and cerebrovascular disorders. YGSA offers a wide range of rehabilitation resources and therapies, including physiatry, occupational therapy, physical therapy, orthoses, speech and language therapy, and neuropsychology.


They also provide educational programs such as aquatherapy and Outdoors Rx to support the overall well-being of individuals. Additional support organizations and not-for-profit stroke organizations are affiliated with YGSA, along with government programs. The organization focuses on raising awareness about pediatric stroke and brain injury, as well as monogenic disorders like ACTA2.


YGSA collaborates with the ACTA2 Alliance and holds annual meetings and clinical speaker series to discuss advancements in research. They also study genetics to understand the role genes play in strokes. To contribute to research and participate in their initiatives, individuals can access the YGSA portal on their website.


YGSA is dedicated to early identification and proper management of young strokes associated with genetic disorders. Overall, YGSA serves as a valuable resource and support system for individuals and families affected by genetic cerebrovascular disorders

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