22q11 Finland

22q11 Finland ry is a Finnish nonprofit association based in Helsinki and serving people throughout Finland. It supports individuals with 22q11.2 deletion or duplication syndromes, their families and caregivers, healthcare professionals, and other organizations. The association works to raise awareness and share reliable information about these rare genetic conditions, drawing on research and connections with the international 22q11 community. It participates in the European 22q11 Europe network and the 22q11.2 Society.

Through its website and activities, 22q11 Finland provides information about diagnoses, testing, inheritance, treatment, and age-appropriate health monitoring. Resources include family fact sheets, professional checklists and care guidance, educational materials, a digital brochure, articles, videos, and an online course. The association also offers peer support, regional discussion groups, personal stories, and opportunities for members to connect at events and camps. It shares current news, organizes awareness activities, and welcomes new members and donations to help support people and families affected by 22q11.2 syndromes. Its resources serve people at different life stages, from childhood through adulthood.