22q11Norge

22q11Norge is a nationwide Norwegian interest and peer-support association for people with 22q11.2 deletion syndrome, their families, and supporters. Guided by the values of togetherness, coping, and joy, the association brings people together and provides information and support throughout life. Its website helps visitors find introductory information about the syndrome, quality-assured professional resources, and documents and guidance from the 22q11 Europe resource library. People seeking personal support can contact trained or experienced peers who share their knowledge and understanding of everyday questions and challenges.

22q11Norge also promotes community through family meetups, courses, and other events, with a calendar of relevant activities, including courses offered by specialist services such as Frambu. The association shares news and information, including updates about international follow-up guidelines and stories related to 22q11.2. Membership and donations help fund its gatherings, peer-support work, and information efforts. A small online shop is being prepared, with merchandise intended to raise awareness and support the association; the store will open once its products, shipping, and purchasing process have been tested.