A-Ncl

A-NCL, the National Association for Neuronal Ceroid Lipofuscinoses, is an Italian nonprofit founded in August 2010 by families affected by these rare and serious diseases. The association grew from a shared experience among parents who sought ways to support their children and connect with others facing similar challenges. Its purpose is to bring together and preserve the knowledge and experience that families can share while navigating the disease, and to contribute to the fight against neuronal ceroid lipofuscinoses.

Through its website, A-NCL provides information about the disease, its better-known forms, therapies and research. It also offers resources for families, including opportunities to exchange experiences and read family stories, alongside news, events and videos. People interested in the condition can learn about the association and join it, while supporters can contribute to its work. A-NCL’s mission centers on connection, shared understanding and sustaining hope for families confronting the effects of these diseases.