ADM1ES

ADM1ES is the Spanish association for people affected by myotonic dystrophy type 1 (DM1), their families, and caregivers. It brings the community together to share reliable information about the disease, its management, and emerging research. The association says its information is checked with clinicians and scientists working in the field, and its mission is to help patients and caregivers learn about advances that may improve care and quality of life.

ADM1ES provides educational resources on DM1 symptoms, diagnosis, clinical follow-up, healthcare centres, symptom management, physical activity, exercise, nutrition, and other practical aspects of living with the condition. It also shares updates on research and clinical trials through its website and blog. A patient registry supports better understanding of the disease and may help encourage clinical trials in Spain.

The association aims to represent the DM1 community, raise awareness, and promote participation in scientific and clinical discussions. Membership is free, and members can receive relevant updates by email.