AIGlico

AIGlico, the Italian Glycogenosis Association, supports people affected by glycogen storage diseases and their families. Its mission combines practical assistance with public and institutional awareness, while promoting scientific research and raising funds for projects at research institutes and hospitals. The association offers services including a listening service, legal advice and support with school inclusion.

Its projects include “Physiotherapy for All,” alongside research initiatives focused on hepatic glycogenoses, non-viral gene therapy and oxidative stress in Pompe disease. AIGlico also organizes conferences and shares information about the different types of glycogenosis, specialized centers and emergency letters. Its educational resources include guides on glycogenoses, Pompe disease and disability, a school inclusion handbook, children’s books and publications about McArdle disease.

People can support its work by donating, becoming or renewing as members, volunteering or organizing fundraisers. Through news updates and a newsletter, AIGlico keeps its community informed and connects patients and families with information, services and research developments