AISPH

The Italian Association for Pitt-Hopkins Syndrome (AISPH), also known as Insieme di Più APS, is an Italian nonprofit organization supporting people affected by Pitt-Hopkins syndrome and their families. Its work brings together information, awareness, research and community support, helping families connect while promoting greater understanding of this rare condition. The association shares scientific information, papers, studies and documents, and provides updates on research and care through its website and communications.

AISPH organizes an annual conference and Pitt-Hopkins Awareness Day, including educational activities, and supports scientific progress through an award for the best university and specialist theses on the syndrome. It also raises awareness through videos, media coverage and public initiatives, and collaborates with scientific advisers and other associations. Families and supporters can learn how to join, receive information, donate or contribute through Italy’s 5×1000 tax allocation. Solidarity initiatives, including seasonal gift items, help fund the association’s projects and activities. AISPH also shares practical benefits for members, such as announced Trenitalia travel discounts for eligible members and companions.