Angelman-Asa

The Angelman Syndrome Association (ASA) is a Spanish nonprofit organization and public-benefit entity supporting people with Angelman syndrome and their families. Founded in Barcelona in 1996 by parents, ASA serves families throughout Spain and is based in Madrid. Its mission is to improve quality of life by connecting families, providing guidance and information, and promoting greater understanding of the condition. The association also encourages research into Angelman syndrome and shares relevant knowledge with families and interested professionals.

ASA offers educational resources on the syndrome, including information about its characteristics, causes, diagnosis and treatments. Its website also covers communication support, such as augmentative and alternative communication systems, literacy, and related legislation and publications. Families can access personal stories, videos, news and practical information, and take part in family gatherings and events. ASA invites people to become members, collaborate or donate to support its work. Through these services and resources, the association aims to create a welcoming space where families feel heard, supported and better equipped to navigate daily life.