AussieRett

The Telethon Kids Institute is a leading research organization dedicated to understanding and addressing Rett syndrome, a rare neurological disorder that primarily affects females and occurs in approximately 1 in 9,000 births. Through its specialized Rett syndrome research team, the Institute manages both national and international databases—AussieRett and InterRett—focused on collecting vital information from families and clinicians. Established in 1993, AussieRett gathers data about individuals with Rett syndrome in Australia, while InterRett compiles insights from around the globe, aiming to enhance knowledge and develop effective treatments.

The Institute offers a wealth of resources, including family guides and evidence-based information on the management of Rett syndrome. Their goal is to empower families and encourage participation in ongoing research initiatives that can lead to breakthroughs in understanding and treating the disorder. By fostering collaboration and innovation, the Telethon Kids Institute strives to improve the lives of those affected by Rett syndrome and promote awareness of related conditions. Join their mission to make a difference through research and advocacy.