Autoinflammatory UK -Making the Invisible Visible

Autoinflammatory UK is the UK's oldest and largest patient-run support group dedicated to individuals and families affected by rare autoinflammatory conditions. Founded and operated by volunteers with firsthand experience, the organization strives to enhance the quality of life for its members through comprehensive support, information sharing, and community engagement.

The group offers a wealth of resources including downloadable leaflets, symptom diaries, and a variety of educational materials that encompass numerous autoinflammatory syndromes, such as Familial Mediterranean Fever, Muckle-Wells Syndrome, and Hyper-IgD Syndrome. They also provide guidance on transitioning from child to adult care, benefits advice, and connections with medical professionals.

With a growing private Facebook community, Autoinflammatory UK fosters an inclusive environment where members can exchange insights, support, and updates related to their conditions. The organization collaborates with the Autoinflammatory Alliance to ensure access to global research and best practices. Ultimately, Autoinflammatory UK is committed to delivering compassionate support and vital information to promote awareness of these often-overlooked conditions.